Narcolepsy in Child and Adolescent Age
– Clinical and Psychosocial Aspects
Nevšímalová S.1 ,Vaňková J.1 ,Pretl M.1 ,Bruck D.2
1 Neurologická klinika 1.LF UK a VFN,Praha 2 Department of Psychology,Victoria University,Melbourne,Australia |
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Summary:
Narcolepsy is a chronic disease beginning often in childhood or adolescence.Owing to the atypical
clinical course at this age,the diagnosis is established several years later;2/3 of the patients are
undiagnosed.Nineteen adolescent patients were included in the clinical study (mean age at diagnosis
13.3 ±3.5 years,mean age at the time of the first symptom 10.1 ±3.4 years,mean latency of diagnosis 2.4
±1.9 years,mean follow-up period 4.1 ±3.5 years).Excessive daytime sleepiness was mostly the first
symptom of the disease (in 11 of 19 patients),frequently without any imperative character of sleepiness.
Attacks of cataplexy were often only sporadic.The fully expressed clinical tetrad (sleepiness,cataplexy,
sleep paralysis,hypnagogic hallucinations),and /or appearance of 3 symptoms were only rarely present
(1/4 of the cases).In 10 subjects from the above mentioned group,a questionnaire study was done with
the aim to expand the knowledge of the psychosocial and emotional impact of narcolepsy in adolescence.
Subjects reported impaired school performance,patients tend to be socially withdrawn,unable to join
leisure activities.Narcolepsy also affected the patients ’personality.All these psychosocial factors
restrict the quality of life,similarly as epilepsy or schizophrenia.
Key words:
narcolepsy,cataplexy,adolescence,clinical picture,MSLT,psychosocial aspects,quality of
life
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